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Links to on-line resources including Prostate Cancer Screening Guidelines, national and local Maine support organizations, blogs and books.
MCFPC Resources
Videos Speaks to How Prostate Cancer Affects Families
Two 30-minute video about prostate cancer and its effect on the lives of Mainers and their families have been produced by the Maine Coalition to Fight Prostate Cancer (MCFPC). Recorded last summer, "Prostate Cancer: What Men and Women Need to Know - Part I" features Mona Ervin as host and panelists Jon Henry of Bangor, Michael Todd of Brunswick and Nelson Leavitt of Augusta. Mona Ervin, the wife of a prostate cancer survivor, currently serves as the Chair of Board of Directors of MCFPC.
The second video, produced in spring 2010, "Prostate Cancer: What Men and Women Need to Know - Part II" also features Mona Ervin as host with panelists, Terry Kungel of Woolwich, Arthur Stolpestad of South Portland, and Jon Henry of Hampden, Maine.
Watch both videos now on our website.
Coalition Speakers' Bureau
The Maine Coalition to Fight Prostate Cancer (MCFPC) is dedicated to ending the devastating impact of prostate cancer on men, their loved ones, and the State of Maine. One of the ways that we can do this is to talk to members of our communities. Read more about the Speakers' Bureau
This is a special opportunity for your community organization, church group, fraternal club, or veterans’ organization to become informed about prostate cancer.
Low Cost Healthcare Options
The MCFPC recently added a new resource for Mainers looking for low cost healthcare options. The new resource page includes lists and contact information for Federally Qualified Health Centers, HealthReach and Maine's Sliding Scale Clinics. Go to the Low Cost Healthcare Options page.
MPBN Show on Prostate Cancer in Maine
Maine Public Television's Jennifer Rooks targeted prostate cancer on "Maine Watch" in 2009. She interviewed Nelson Leavitt (president of MCFPC); Michael Todd, an Advisor and Brunswick Area Support Group Leader; Jon Henry a Director of MCFPC and Bangor Area Support Group Leader; Dr. Moritz Hansen, a urologist from southern Maine; and Kip DeSerres of the American Cancer Society.
Visit the MPBN website for complete information about Maine Watch and to watch this episode.
Maine Medical Center Cancer Institute Prostate & Other Genitourinary Cancer Clinical Patient Navigator
Weighing the risks and benefits of prostate cancer treatment is difficult for both patients and physicians.
This is especially true at a time when you are still reeling from your recent diagnosis. To help patients make the most informed and timely treatment decisions, Maine Medical Center Cancer Institute provides a dedicated full-time nurse who serves as a Prostate & Other Genitourinary Cancer Clinical Patient Navigator.
For patients newly-diagnosed with prostate or other genitourinary cancer, the Clinical Patient Navigator serves as an information resource to help them understand their diagnosis and treatment options.
Once you have a good understanding of your diagnosis, stage and treatment options, the navigator will focus on making sure you are aware of the risks and benefits of each treatment option.
Key elements of the Clinical Patient Navigator’s role include:
- Guiding patients through the health care system, establishing rapport with newly-diagnosed cancer patients, family members, loved ones, and caregivers
- Conducting meaningful discussions with patients following their initial consultations with physicians in Urology, Radiation Oncology, and Medical Oncology
- Actively identifying and addressing barriers to care that might keep you from receiving timely and appropriate treatment for your cancer diagnosis (barriers may include health insurance/financial concerns, transportation to and from treatment, physical/psychosocial needs, communication/cultural needs, or disease management)
- Connecting patients with resources, health care and support services in their communities
- Assisting the patient in the transition from active treatment to survivorship
There is no charge to patients for this service , and you may call or visit the Clinical Patient Navigator as many times as you need in order to feel comfortable and confident about their treatment decision.
Please contact:
Jennifer R. Powers, MS, BSN, CCRC Maine Medical Center Cancer Institute Clinical Patient Navigator for Genitourinary Cancer 100 Campus Drive, Unit 102 Scarborough, Maine 04074 Telephone: 207.885.8439 Fax: 207.885.8595
New Maine State Wellness Website
KeepMEWell is a new website designed to help Maine residents assess their risk for chronic disease, improve their health through education, and link them to local resources and supports that can help them decrease their risk of chronic disease and improve their health. It is part of the Governor's Universal Wellness Initiative aimed at helping Maine reach its goal of becoming the healthiest state in the nation.
KeepMEWell has two main features. The first is an assessment that Maine residents, 18 years or older, can complete. Based on your answers to a series of health questions, you will get three personalized reports. The reports assess your risk for chronic disease, highlight where you can take action to improve your health, and provide a list of local resources in your area that can help with disease prevention and management.
The second feature helps Mainers, especially those who are uninsured or underinsured, learn about low cost healthcare services in their local area.
Visit KeepMEWell
Patrick Dempsey Center for Cancer Hope & Healing offers Financial Resource Counseling
Medical bills and other financial challenges are often a significant concern for cancer patients. To help patients navigate the financial challenges that cancer can bring, the Patrick Dempsey Center for Cancer Hope & Healing is offering the services of a qualified Financial Resource Counselor as an integral part of the Central Maine Comprehensive Cancer Center care team. More information about this service.
Local newspapers cite screening issues
Entitled 'It saved my life' Group of prostate cancer survivors calls for more frequent screenings, Matthew Stone, a reporter for the Kennebec Journal in Augusta and the Morning Sentinel in Waterville, interviewed MCFPC board member Jon Henry regarding the efforts to increase screening. Read the entire article.
Also, an article, "Don't keep us in the dark" by MCFPC president Nelson Leavitt has appeared in the Capital Weekly, published by Village Soup. Read the article by Nelson Leavitt.
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Prostate Cancer Support & Information
Prostate Cancer Screening Guidelines
American Cancer Society (ACS)
American Urological Association (AUA)
Support and Information Organizations
Zero - The Project to End Prostate Canter (formerly National Prostate Cancer Coalition) 888-245-9455 www.zerocancer.org
Us TOO 630-795-1002 support hotline 800-808-7866 www.ustoo.com
Man-to-Man 800-227-2345 Man-to-Man Webpage
Malecare www.malecare.com/
Out With Cancer - LGBT Cancer Program Social Network www.outwithcancer.com/
Cancer Community Center - Maine Buddy Program 207-774-2200 toll free 877-774-2200 www.cancercommunitycenter.org
New England Coalition for Cancer Survivorship www.neccs.org
Prostate Cancer Foundation 800-757-2873 www.prostatecancerfoundation.org
The Prostate Net 888-477-6763 http://www.theprostatenet.org/
Prostate Cancer Clinical Trials Resource www.cancer.gov/clinicaltrials/prostate-cancer-updates
Prostate Cancer Education Council 866-477-6788 http://prostateconditions.org/
Prostate Cancer Coalition of North Carolina www.pccnc.org
Prostate Forum www.prostateforum.com
Prostate Knowledge - Harvard Medical School harvardprostateknowledge.org
Prostate Health Education Network - PHEN-TV www.prostatehealthed.org and www.phentv.com
National Alliance of State Prostate Cancer Coalitions - NASPCC www.naspcc.org/
American Cancer Society 800-ACS-2345 www.cancer.org
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Maine Services and Organizations
Maine Cancer Foundation
mainecancer.org
Beth C. Wright Cancer Resource Center www.bethwrightcancercenter.org
Cancer Community Center - Maine Buddy Program 207-774-2200 toll free 877-774-2200 www.cancercommunitycenter.org
Dempsey Center for Cancer Hope and Healing www.dempseycenter.org
Maine Cancer Consortium www.mainecancerconsortium.org
Maine Health Learning Resource Center 207-885-8570 www.mainehealth.org
Cancer in Maine www.MaineHealthForum.org
Maine Mental Health www.mainementalhealth.com
NAMI Maine nami.org
Maine State Mental Health Services www.state.me.us/bds/mhservices/MHindex.html
Maine Department of Health and Human Services Bureau of Medical Services www.maine.gov/dhhs/bms/
Bureau of Elderly & Adult Services www.maine.gov/dhhs/beas/
Maine Care/Medicaid www.state.me.us/dhhs/mainecare.shtml
Maine Care - eligibility www.mejp.org/medicaid.htm
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Other info about Prostate Cancer
Expert Information about Symptoms and Treatment of Prostate Cancer www.zerocancer.org/APC_AboutProstateCancer
PHOENIX5 LIBRARY www.phoenix5.org
daVinci Prostatectomy www.davinciprostatectomy.com
American Foundation for Urological Disease 800-242-2383 www.auafoundation.org/auafhome.asp
American Cancer Society 800-ACS-2345 www.cancer.org
US National Library of Medicine National Institute of Health Medlineplus www.medlineplus.gov
The Clinical Trials Resource Center - CenterWatch www.centerwatch.com/patient/studies/area12.html www.CancerTrialsHelp.org
National Cancer Institute (NCI) www.cancer.gov
Patient Inform www.patientinform.org
Cancer Society Cancer Survivors Network www.acscsn.org
Center for Prostate Disease Research www.cpdr.org
BioMedSearch
www.biomedsearch.com
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Blogs
Advanced Prostate Cancer - Blog advancedprostatecancer.net/
Prostate Cancer Advocacy and Action - Blog prostatecancerblog.org/
Living with Prostate Cancer - Wives get prostate cancer too - Blog prostatecancerblog.net/
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Books
This is a link to a bibliography of suggested reading [PDF - plugin required] on the topic of prostate cancer.
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